Today marks my 7- month transplant anniversary.
It’s been quite a month. I’ve had a lot of highs and lows with my labs, a lot of new medication side effects, and my back problems have gotten so much worse, so I’ve been seeing new doctors for that. We’re also trying new breathing treatments to prevent PCP (a dangerous type of pneumonia) since my white cell count is so low, and my doctors have adjusted several meds this month as well. Additionally, I’ve been in the ER twice, once with back pain, and another time with something we think may be an effect from the back pain. (The picture above is from the ER.) I’ve started acupuncture and begun my osteomanipulative treatments, so I’m hoping for some relief. Sometimes I wish I could just have one week without seeing any doctors or practitioners, one week without any phone calls or labs or paperwork. Is it sad that this is my dream?
Even at that, I’m tapping my foot and twiddling my thumbs, just waiting for some kind of normal life to return. My liver is doing great, but even a slight fluctuation in my enzymes really upsets my body. I get so tired all I can do is lay in bed. Then we get them under control, and I’m better than ever! The ups and downs are very frustrating to me. As is dealing with the side effects of these meds, especially the Prograf (anti-rejection/immunosuppressant) and the Prednisone (steroids). Everyone says things stabilize after the first year, and I’m aching to get there. September 1!
On another note, I am still working on starting therapy for the post-traumatic stress disorder. I have nightmares and flashbacks, and I’ve learned this happens in a percentage of transplant or surgery patients. I suffered from this before when I initially got sick as a child, so I was predisposed to get it. Once I start therapy, I hope to get out of this state of mind.
I’ve been continually trying to share my story with anyone who will listen. I’m still amazed at what God has done for me, and that’s the bottom line. Yes, I am still adjusting to this life, and some days are a challenge, but that doesn’t matter in the whole scheme of things. I’m a walking miracle, and if you’ve followed my story, I’m sure you’ve seen it as well.
So I’ve decided that I’m not succumbing; I am rising above. I’ve made that choice.
I have so many wonderful joys in my life and so much support here for whatever may happen. I’m so grateful.
And on this high note, here is my “News” – I want to share that I am definitely going to Ireland in May. All my doctors have cleared me, and I’m absolutely beyond excited for this 2-week trip with my nursing school. 7 months ago, we didn’t know when I’d ever be able to travel again, and now I’ve been completely cleared to go out of the country at that!
Thank you for sharing this journey with me and for your prayers. I pray for all of you, as well. 🙂
So thankful for this today…
Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
Romans 8.35, 37-39